Friday 29 April 2022

Mummy's eyes and ears don't work well - Tia

I've been in many different situations in having to explain my condition to people but the hardest by far has been to Lidia. 

Mainly due to her age, it's hard for any typical person to understand the impacts so how can I expect her to? 

I also don't want to scare or cause her to worry about mummy. I feel so strongly about becoming a burden to anyone, never mind my own daughter.

But I've always wanted to be open to her and it's important she understands why mummy does some things differently and why I can't do everything she wants me to. 

The hearing has been quite easy to explain. I think the physical element of hearing aids and knowing they have a microphone to help mummy's hear things better makes it an easier concept to grasp. She knows to talk directly in my ears when I don't have my aids in or get closer to me when she's talking. 

The eyes is another story. I think she assumes glasses fixes my issues so it's a bit harder for her to understand. I try to break it down to simpler specific things - I need you to hold my hands as I can't see when you are far away or running fast. - You can't leave cupboards open as I might bump into them, remember mummy eyes don't work as well as yours in seeing things. 

It is getting harder as she gets more independent but still not old enough to understand. I feel like I set a lot of 'rules' to give her some way of knowing what and why we do things. I hope this will improve as her understanding improves with age. 

But saying that she has picked many things up naturally to help me, from 6 months she was picking her dummy off the floor when she dropped it as I could never find the bloody things, now she tells me when microwave is beeping, she regularly helps me find anything I'm struggling to look for and calls herself a master finder 😄 she tells me what colour things are when I need help, she even matches her outfits sometimes and better than me! 😄 she cuddles me when I have accidents/bumps and tells me I'm just a clumsy bum like her to make me laugh. 

Wish there was a guidebook sometimes, but I'm sure we will find our way together eventually and with a smile on our faces 🙂

Thursday 28 April 2022

WREN - Written by Greg

This poem by Greg was inspired by the Birdsong Talk that we held at SRSB in April 22. Our Creative Writing Group used birdsong as a theme:

I hear her song before the dawn

Her lively, boisterous shrill

From woodland thicket she doth churr

Rattle, rasp and trill


From bramble hedge and undergrowth

She warbles notes that ring

Her rattling chit and vibrant chat

With gusto she doth sing


She flits and flitters tween frosty hedge

And in bushes she doth hide

Her determined strain-strong and loud

Full throated, sung with pride


Now she’s busy, active, foraging

This precious troglodyte

Bobs and hops with neat cocked tail

Then nimbly takes to flight 


And still, she jounces, darts and waggles

Does this jenny ever rest?

Or snuggle neatly in her cave

Like a wee mouse in its nest?


I hear her song before the dawn

Her lively, boisterous shrill

From woodland thicket she doth churr

Rattle, rasp and trill